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The portcullis allows only a limited set of formally described data in officially defined data formats across the bridge. The portcullis has other functions that are arcane somewhat, but which are essential for security. The data-storage space software will be what’s being called “in the cloud” currently. That means that the data is stored in data centers that are protected by the USDN like the bridge/portcullis.
Additionally, the operating system and application software will be personalized to accept only data that is in the authorized formats. The Medical Information Infrastructure is a cornucopia of data for medical research. Currently, this data is, in the main, inaccessible to medical researchers do all of the rules and regulations for the current fractured system and to the type of gathering data from a fractured system.
With the functions and features of using the USDN, data from the Medical Information Infrastructure could be made available to the researcher without destroying the privacy of the customers of the system. In turn, this might reduce the price of medical research significantly. Due to the size, range, and complexity of the Medical Information Infrastructure it will require at least a decade for the original build away.
I will explain the major duties of the build out, as I envision them, currently. The key to the USDN is setting up the procedures for defining data, meta-data, governance, and infrastructure management. Without these, the infrastructure will either be hacked immediately or be completely ineffective. As I see it, the governance of the infrastructure will make or break both the security and utility of the infrastructure.
This governance pieces the info, meta-data, and infrastructure management procedures, standards, and guidelines for the infrastructure. That’s the reason it needs to be the first job; though it’ll run concurrently with other jobs. As I envision it the board of governors (guiding group, regardless of the name) should consist of doctors, medical researchers, insurance personnel, and IT professional from business and academia.
Getting that eclectic group moving in the same route will be difficult. Therefore, I think a Business Architect with a Systems Engineering group will be needed. There should be considered a process setup for defining the data that needs to be in the USDN, the format for communicating that data as well as for creating, updating, and deleting data constructions and types.